Knees of an 80 year old!

Not literally, it’s all a waiting game..

Over the summer holidays my nearly 7 year old was diagnosed with juvenile arthritis. What does this mean? It means that she has swelling of the synovium, it gets this name because it happens in children aged 16 and under. Hence why it is called juvenile arthritis.

The synovium is the tissue that lines the joints; it is also known as an auto immune disease.

The process has not been easy, and watching one of your babies going through multiple tests, being in pain, missing out on things at school and just being plan miserable hasn’t been easy.

Back in April 2019 I recieved a call from Annabelles school, she had started to complain her legs were hurting.. and they had noticed she had two golf ball size lumps on the back of her legs.

So that Thursday after school I took her to the doctors, who were concerned and referred us to a&e. We were there until 11pm, she had an x-ray and multiple doctors and nurses coming to see her and check her knees.

Bakers cysts they came back with, and that was that! But over the next few months things got worse; she was sitting on a chair in the classroom, missing p.e, play time at lunch, and she even misses sports day.

So I pushed it again, the doctor referred her urgently back to the hospital. So peadiatrics saw us, took bloods and scheduled an ultra sound scan.

So in July her bloods came back clear, but they were concerned with the swelling of her knees and the fluid inside.

Suddenly in the middle of the summer holidays I recieved a call, from the rheumatology children’s department, they were diagnosing her with juvenile arthritis.. and they wanted her in the following week for a procedure to start relief.

I can’t even begin to explain the nerves and fear I had for her, my 7 year old being put to sleep. I knew the steroids would help but that doesn’t stop the anxiety!

She was brave so so brave, I’ve never witnessed anyone being put to sleep before, I can’t say it was a nice experience.. she was thrashing around abit whilst drifting off!

Bless her heart she’s a wimp like me when it comes to needles! Being a jia mum has it challenges, she will have her challenges.. and the steroids are due to wear off next month.

But my warrior has got this!

Uveitis is a risk in arthritis, it’s inflammation in the eyes, which untreated will get worse quickly and can cause blindness. So she along with check ups will need specialist eye tests every 3/4 months.

If that’s what it takes to keep my baby safe then she’s got this.

This girl will let nothing stop her!!

Signs and symptoms are different in every child, but recognising the signs and getting some advice if you child is showing any symptoms, will get on top of the disease.. these can include;

– Joint stiffness (especially in the morning)

– Tender and painful joints

– Limping

– Possibly a fever

– Weight loss

– Fatigue

– Irritability

– Joint warmth

– Joint redness

– In rare cases like Annabelle, Bakers Cysts can occur with JIA.

I hope to raise awareness for this horrid disease, it’s nobody’s fault. And it’s harder for children because they don’t fully uunderstand.

If you’re a jia warrior mum like me, there is so much help and support out there; and we can still help them lead normal lives!

Author: Sian’sways

Hello, my name is Sian. I started this blog in 2017 after the death of our baby Betsy. I am the sort of person that finds writing things down and expressing myself helpful. But I want to express myself in so many different ways and talk about so many things including; Mental Health, Baby Loss, Fashion, Motherhood, Hauls, DIY, Beauty, Reviews and so many other things

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: